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Woman B: I am paraplegic due to a spinal cord injury. I've had depression on and off since I was 7, and anorexia for the last two years. How has your disability affected your relationship with your body, for better or for worse?
Woman A: Dysautonomia, which causes chronic fatigue, dehydration, fainting, and I also have an immune deficiency disease, which means I have a greater susceptibility to infections and a harder time than normal fighting them off. Woman D: I've had Ehlers-Danlos all my life, but it got a lot worse when I was 23.
The symptoms range from mild dizziness and brain fog to completely debilitating autonomic nervous system dysfunction. Now, I have regained mobility through ongoing biofeedback treatment and can go throughout my average day with mild to moderate symptoms like increased heart rate and pain. I feel like I'm very aware of how fragile the body is. It also pushed me to seek advice from a high-risk ob-gyn — literally years before I'm planning on having children, just so I could get an idea of what pregnancy — or infertility — would look like for someone with my disease. I still worry that some of my essential medications might hurt a pregnancy. I was a teenager when I had my injury, so my body was in a state of change anyway.
Woman C: POTS (Postural Orthostatic Tachycardia Syndrome), a form of dysautonomia. Woman A: I've had my fair share of disfiguring surgical scars and my disease can mean fluctuating weight, but it also makes me appreciate all the things my body can still do.Works to promote dialogue among African American activists and scholars on the left; to discuss critical issues on the national and international scene that pertain to the Black community; to explore new strategies and directions for progressive political, social and cultural movements; and to renew the Black radical movement through increased unified action.